Engage with Developmental Language Disorder Accessible Databases, October 2024 release

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EDLDYearlySurvey3YearsOld_EDLD.pdf

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E-DLD database notes .docx

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http://eprints.org/relation/isVersionOf https://researchdata.bath.ac.uk/id/document/18436 http://eprints.org/relation/isVolatileVersionOf https://researchdata.bath.ac.uk/id/document/18436 http://eprints.org/relation/isIndexCodesVersionOf https://researchdata.bath.ac.uk/id/document/18436 archive 5242 disk0/00/00/14/58 2024-10-18 08:33:18 2026-02-23 12:04:14 2024-10-18 08:33:18 data_collection show St Clair Michelle M.C.St.Clair@bath.ac.uk 0000-0003-4015-7435 University of Bath TRUE ProjectMember Gibson Jenny jlg53@cam.ac.uk 0000-0002-6172-6265 University of Cambridge ProjectMember Leitao Suze S.Leitao@exchange.curtin.edu.au 0000-0003-3229-3226 Curtin University ProjectMember Jackson Emily emily.jackson@curtin.edu.au 0000-0002-2537-7387 Curtin University ProjectMember Botting Nicola nicola.botting.1@city.ac.uk 0000-0003-1082-9501 City, University of London Engage with Developmental Language Disorder Accessible Databases, October 2024 release JN0010 dept_psy Some data has been extensively recoded to produce more meaningful data that can be easily analysed (e.g., bedtimes were coded into half hour slots rather than retaining the free text responses, which varied substantially across participants). Qualitative content was retained where ever possible, but has also been anonymised to prevent disclosing parent or child identities. These datasets contain information gathered at study sign up and within the yearly surveys for parent members of the Engage with Developmental Language Disorder Project (or E-DLD project). Parents signed up to the E-DLD project as they decided to be part of the research database project, where they received monthly or quarterly emails about research projects currently recruiting participants. On sign up, they gave demographic information about themselves, their family and their child with DLD along with indicating what areas of language their child struggles with, any co-occurring conditions and their child's official DLD diagnosis. About two weeks after sign up, they received an invitation to complete a yearly survey. The yearly survey content changes according to the child's age, which is determined at the beginning of the yearly survey. Completion of the yearly survey was optional. In total, these databases contain 198 parents within the sign up database and 137 parents who completed at least one year (but often multiple years) of the yearly survey. Children were aged between 3 and 15. Data was collected between October 2020 and April 2024. 2024-10-18 University of Bath restricted RightsHolder University of Bath University of Bath https://doi.org/10.13039/501100000835 All data was collected online through the REDCap online survey platform. E-DLD members have found out about the project a variety of ways, but found the sign up link through our website in most instances. Parents indicated their status as a parent of a child with DLD in an initial question and then were presented with an information sheet and consent forms (including consent for their data to be made more widely accessible). After fully consenting, parents were asked to fill in the sign up survey. Parents who indicated their child has autism as their main diagnosis were sign posted to autism research databases and are not included in these databases. Two weeks after sign up (and thereafter on a yearly basis) parents were invited to complete a more in depth yearly survey, which is tailored to the child's specific age. The yearly survey was optional and the parents received two reminders after the initial email. Thereafter, they did not receive further reminders. Parents were occasionally emailed about incomplete sign up surveys and provided with a link and return code to complete their survey. This was also optional. The data processing was conducted by Michelle St Clair with assistance from research assistants assigned to the project. The dataset consists of Stata files (.dta), with a version provided in SPSS (.sav) format. https://doi.org/10.1111/1460-6984.12835 2020-09-17 2024-04-23 en 1 10.15125/BATH-01458 https://doi.org/10.1111/1460-6984.12835 pub http://www.engage-dld.com website request Due to the evolving nature of this research, this dataset is available access on request to bona fide researchers only. The E-DLD team will ensure that the research questions do not overlap with other questions currently being investigated. Dataset