Dataset for "A patient-industry complex? Investigating the financial dependency of UK patient organisations on drug company funding"

904 66 13504 3 41703 document 13504 Online_Appendix_1_v1.1.docx application/vnd.openxmlformats-officedocument.wordprocessingml.document 65ada13f4d483e22b7735f8c115305ca MD5 51210 2020-09-09 10:34:29 https://researchdata.bath.ac.uk/904/1/Online_Appendix_1_v1.1.docx 904 1 1 application/vnd.openxmlformats-officedocument.wordprocessingml.document other Details of data collection - drug company disclosure reports en public cc_by

Online_Appendix_1_v1.1.docx

data 13505 3 41705 document 13505 Online_Appendix_2_v1.2docx.docx application/vnd.openxmlformats-officedocument.wordprocessingml.document 1c495134cc307bab102fbf844cc8f9fc MD5 37234 2020-09-09 10:35:01 https://researchdata.bath.ac.uk/904/2/Online_Appendix_2_v1.2docx.docx 904 2 2 application/vnd.openxmlformats-officedocument.wordprocessingml.document other Details of data collection - patient organisation annual accounts en public cc_by

Online_Appendix_2_v1.2docx.docx

data 13506 3 41707 document 13506 Online_appendices_03-37_v1.2.6.xlsx application/vnd.openxmlformats-officedocument.spreadsheetml.sheet 3ab72c4235fd90381d149520e752a780 MD5 139866478 2020-09-09 10:38:15 https://researchdata.bath.ac.uk/904/3/Online_appendices_03-37_v1.2.6.xlsx 904 3 3 application/vnd.openxmlformats-officedocument.spreadsheetml.sheet other Details of data organisation and preparation for analysis; data underpinning the analysis presented in the paper; additional background calculations en public cc_by

Online_appendices_03-37_v1.2.6.xlsx

data 13507 1 41711 document 13507 indexcodes.txt text/plain 8c11c5463d39c4f6f9af921f722eb7b9 MD5 2461 2020-09-09 10:45:08 https://researchdata.bath.ac.uk/904/4/indexcodes.txt 904 4 4 text/plain other Generate index codes conversion from other to indexcodes en public

indexcodes.txt

http://eprints.org/relation/isVersionOf https://researchdata.bath.ac.uk/id/document/13504 http://eprints.org/relation/isVolatileVersionOf https://researchdata.bath.ac.uk/id/document/13504 http://eprints.org/relation/isIndexCodesVersionOf https://researchdata.bath.ac.uk/id/document/13504 13508 1 41712 document 13508 indexcodes.txt text/plain 58c61bae935369b1627ef2bfddcca90f MD5 639 2020-09-09 10:45:08 https://researchdata.bath.ac.uk/904/5/indexcodes.txt 904 5 5 text/plain other Generate index codes conversion from other to indexcodes en public

indexcodes.txt

http://eprints.org/relation/isVersionOf https://researchdata.bath.ac.uk/id/document/13505 http://eprints.org/relation/isVolatileVersionOf https://researchdata.bath.ac.uk/id/document/13505 http://eprints.org/relation/isIndexCodesVersionOf https://researchdata.bath.ac.uk/id/document/13505 archive 4224 disk0/00/00/09/04 2021-12-13 17:10:29 2024-07-03 14:59:07 2021-12-13 17:10:29 data_collection show Ozieranski Piotr P.Ozieranski@bath.ac.uk 0000-0002-2023-3288 University of Bath TRUE Pitter Janos janos.pitter@syreon.eu 0000-0002-6784-9215 Syreon Research Institute FALSE Rickard Emily E.J.Rickard@bath.ac.uk 0000-0003-2251-0127 University of Bath FALSE Mulinari Shai shai.mulinari@soc.lu.se 0000-0001-8773-9796 Lund University FALSE Csanadi Marcell marcell.csanadi@syreon.eu 0000-0002-5724-639X Syreon Research Institute FALSE Dataset for "A patient-industry complex? Investigating the financial dependency of UK patient organisations on drug company funding" JT0010 JZ0010 JZ0020 dept_soc_sci pharmaceutical industry, patient organisations, payments, transparency, conflicts of interest, funding, financial dependency The data is organised into appendices which correspond with specific parts of the Methods and Results section of the paper entitled "A “patient-industry complex”? Investigating the financial dependency of UK patient organisations on drug company funding (2012-2016)". This digital dataset includes Appendices accompanying the paper entitled ‘A “patient-industry complex”? Investigating the financial dependency of UK patient organisations on drug company funding (2012-2016)’. The Appendices provide (1) raw data analysed in the paper; (2) background details of data collection and analysis; (3) additional research findings and commentary. The Appendices draw on data extracted from two sources: A. Yearly disclosure reports published by 62 UK-based drug companies, on their respective websites, including payments made to patient organisations registered as charities in the UK; B. Yearly financial accounts produced by 399 UK-based patient organisations and published on charity regulator websites. The data is divided into Appendices which are signposted throughout the Methods and Findings sections of the above-mentioned article. 2021-12-07 University of Bath public RightsHolder University of Bath Swedish Research Council for Health, Working Life and Welfare https://doi.org/10.13039/501100006636 2016-00875 What can be learnt from the new pharmaceutical industry payment disclosures? Swedish Research Council https://doi.org/10.13039/501100004359 2020-01822 Following the money: cross-national study of pharmaceutical industry payments to medical associations and patient organisations cent_casp The methodology used to create this dataset is described comprehensively in the Methods section of the paper entitled "A “patient-industry complex”? Investigating the financial dependency of UK patient organisations on drug company funding (2012-2016)". In short, the data collection process had three stages. First, we downloaded disclosure reports detailing the number and value of payments to patient organisations made by a sample of 108 companies participating in the Disclosure UK initiative in 2015 (https://www.abpi.org.uk/our-ethics/disclosure-uk/). The reports covered the 2012-2016 calendar years. Second, we searched for the annual accounts of patient organisations identified in the drug company payment disclosure reports on the websites of the three UK charity regulators, that is the Charity Commission for England and Wales (https://www.gov.uk/government/organisations/charity-commission), the Scottish Charity Regulator (https://www.oscr.org.uk/) and the Charity Commission for Northern Ireland (https://www.charitycommissionni.org.uk/). The reports covered the 2012/3-2016/17 financial years. For patient organisations identified with reports identified on the charity regulator websites we extracted the yearly values of income and expenditure. Third, we collected available online information on the following characteristics of patient organisations identified in the drug company payment disclosure reports: organisational goal; presence of members or volunteers; geographical scope of activity headquarter location within the UK; represented disease area. The data from was initially extracted into separate Excel spreadsheets and subsequently combined for the purposes of analysis. In total, this online dataset comprises 37 Appendices, providing background details on the data collection, aggregation and analysis as well as additional research results and related commentary. The data was created and prepared for analysis using Excel (primarily "countifs", "sumifs", and "V-lookup" functions). 2017-06-01 2018-07-31 2012 2016-12-31 The UK en 1 10.15125/BATH-00904 https://doi.org/10.1111/1467-9566.13409 pub open Dataset