Underreporting of drug industry payments to patient organisations in the UK (2012-2016)

This online dataset comprises web supplements (WS) accompanying the paper entitled “An underreported relationship: a comparative study of pharmaceutical industry and patient organisation payment disclosures in the UK (2012-2016)”.

The dataset includes aggregated information from

1. yearly disclosure reports published by 63 UK-based drug companies including payments made to patient organisations;
2. yearly financial accounts produced by 200 UK-based charities and published on charity regulator websites.

The data is divided into web supplements 3-20 which are signposted throughout the Results section of the above-mentioned article as “web supplement XX”.

Keywords:
pharmaceutical industry, patient organisations, payments, transparency, accountability
Subjects:

Cite this dataset as:
Ozieranski, P., Csanadi, M., Rickard, E., Mulinari, S., 2020. Underreporting of drug industry payments to patient organisations in the UK (2012-2016). Bath: University of Bath Research Data Archive. Available from: https://doi.org/10.15125/BATH-00784.

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Data

Underreporing … revision_final.xlsx
application/vnd.openxmlformats-officedocument.spreadsheetml.sheet (379kB)
Creative Commons: Attribution 4.0

Creators

Marcell Csanadi
Syreon Research Institute

Emily Rickard
University of Bath

Documentation

Data collection method:

The methodology is described in full in the Data sources and extraction section of the paper entitled "An underreported relationship: a comparative study of pharmaceutical industry and patient organisation payment disclosures in the UK (2012-2016)". In brief, the data collection process involved downloading disclosure reports including payments to patient organisations made by a sample of 108 companies participating in the Disclosure UK initiative in 2016 (https://www.abpi.org.uk/our-ethics/disclosure-uk/). We subsequently searched for the annual accounts of patient organisations identified in drug company payment disclosure reports on the websites of the three UK charity regulators, that is the Charity Commission for England and Wales (https://www.gov.uk/government/organisations/charity-commission), the Scottish Charity Regulator (https://www.oscr.org.uk/) and the Charity Commission for Northern Ireland (https://www.charitycommissionni.org.uk/). The payment data from drug company payment disclosure reports and charity annual accounts was extracted into two separate Excel spreadsheets. We subsequently combined payment records form the two spreadsheets into a single excel spreadsheet comprising a series of drug company by patient organisation matrices corresponding with different types of analysis carried out as part of our research study. In total, this online dataset comprises 17 web supplements with the results of calculations based on these matrices. The web supplements correspond with and provide additional background information for specific subsections in the Results section of the article entitled "An underreported relationship: a comparative study of pharmaceutical industry and patient organisation payment disclosures in the UK (2012-2016)".

Technical details and requirements:

The data was created using Excel (primarily "countifs", "sumifs", and "V-lookup" functions)

Additional information:

The data is organised into 17 appendices which correspond with specific parts of the Results section of the paper entitled "An underreported relationship: a comparative study of pharmaceutical industry and patient organisation payment disclosures in the UK (2012-2016)".

Funders

Forskningsrådet om Hälsa, Arbetsliv och Välfärd (FORTE)
https://doi.org/10.13039/501100006636

What can be learnt from the new pharmaceutical industry payment disclosures?
2016-00875

Publication details

Publication date: 10 July 2020
by: University of Bath

Version: 1

DOI: https://doi.org/10.15125/BATH-00784

URL for this record: https://researchdata.bath.ac.uk/id/eprint/784

Related articles

Ozieranski, P., Csanádi, M., Rickard, E. and Mulinari, S., 2020. Under-reported relationship: a comparative study of pharmaceutical industry and patient organisation payment disclosures in the UK (2012–2016). BMJ Open, 10(9), p.e037351. Available from: https://doi.org/10.1136/bmjopen-2020-037351.

Contact information

Please contact the Research Data Service in the first instance for all matters concerning this item.

Contact person: Piotr Ozieranski

Departments:

Faculty of Humanities & Social Sciences
Social & Policy Sciences

Research Centres & Institutes
Centre for Analysis of Social Policy (CASP)