Dataset for "Informed, involved or empowered? A typology of Western European autism policy, with a focus on designing policies for autistic empowerment"
This dataset provides information on the characteristics of different Western European autism policies. It focuses particularly on opportunities for autistic people to get involved in policy.
The dataset consists of policy mapping to identify the characteristics of autism-specific, national-level policies from within the Western European and Others group as designated by the UN. The following data is included:
- List and download locations of autism policies.
- Coding data for policy instruments, including Category (as per Schneider and Ingram's typology), Instrument Type, Conditions, Goals, Actors and Funding.
- NVivo analysis of policy documents showing most frequently used words.
Cite this dataset as:
Precious, K.,
University of Bath,
2020.
Dataset for "Informed, involved or empowered? A typology of Western European autism policy, with a focus on designing policies for autistic empowerment".
Bath: University of Bath Research Data Archive.
Available from: https://doi.org/10.15125/BATH-00867.
Export
Data
Policy Instrument Coding.xlsx
application/vnd.openxmlformats-officedocument.spreadsheetml.sheet (65kB)
Creative Commons: Attribution 4.0
High frequency … documents.nvp
application/octet-stream (22MB)
Creative Commons: Attribution 4.0
Contributors
Susan Milner
Supervisor
University of Bath
Isabelle Engeli
Supervisor
University of Exeter
Katie Maras
Supervisor
University of Bath
Coverage
Collection date(s):
From 2018 to 2019
Temporal coverage:
From 2008 to 2018
Geographical coverage:
Western Europe
Documentation
Data collection method:
There were three qualifying criteria for inclusion of a national autism policy in the sample. I defined national policy as a policy emanating from a Parliament or Assembly with devolved powers over education, health and social care. Firstly, the Parliament or Assembly had to be in a country classified as Western European, defined as included in the United Nations Western European and Others Group (WEOG) dataset. Secondly, it had to have a current, autism-specific policy (a policy dealing exclusively with autism). This was to isolate autism policy from disability policy and ensure reliability. Thirdly, there had to be sufficient detail in the policy to enable the instrument types and other details to be coded. Twelve policies met these criteria. The dataset also identifies those policies which were excluded, and the reasons why.
Technical details and requirements:
Files were prepared in Microsoft Excel and NVivo.
Documentation Files
Policy Mapping … Locations.xlsx
application/vnd.openxmlformats-officedocument.spreadsheetml.sheet (14kB)
Creative Commons: Attribution 4.0
Funders
Economic and Social Research Council
https://doi.org/10.13039/501100000269
Studentship - The underdog empowered: a case study of autistic policy influence in England
2102376
Publication details
Publication date: 20 September 2020
by: University of Bath
Version: 1
DOI: https://doi.org/10.15125/BATH-00867
URL for this record: https://researchdata.bath.ac.uk/id/eprint/867
Related papers and books
Precious, K., 2020. Informed, involved, or empowered? Three ideal types of autism policy design in Western Europe. European Policy Analysis, 7(1), 185-206. Available from: https://doi.org/10.1002/epa2.1092.
Contact information
Please contact the Research Data Service in the first instance for all matters concerning this item.
Contact person: Katharine Precious
Faculty of Humanities & Social Sciences
Politics, Languages and International Studies
