Dataset for "Informed, involved or empowered? A typology of Western European autism policy, with a focus on designing policies for autistic empowerment"

This dataset provides information on the characteristics of different Western European autism policies. It focuses particularly on opportunities for autistic people to get involved in policy.

The dataset consists of policy mapping to identify the characteristics of autism-specific, national-level policies from within the Western European and Others group as designated by the UN. The following data is included:

- List and download locations of autism policies.
- Coding data for policy instruments, including Category (as per Schneider and Ingram's typology), Instrument Type, Conditions, Goals, Actors and Funding.
- NVivo analysis of policy documents showing most frequently used words.

autism policy, autism, political opportunity structure, advocacy, policy design, empowerment
Political science and international studies

Cite this dataset as:
Precious, K., University of Bath, 2020. Dataset for "Informed, involved or empowered? A typology of Western European autism policy, with a focus on designing policies for autistic empowerment". Bath: University of Bath Research Data Archive. Available from:


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Policy Instrument Coding.xlsx
application/vnd.openxmlformats-officedocument.spreadsheetml.sheet (65kB)
Creative Commons: Attribution 4.0

High frequency … documents.nvp
application/octet-stream (22MB)
Creative Commons: Attribution 4.0


University of Bath
Rights Holder


Susan Milner
University of Bath

Isabelle Engeli
University of Exeter

Katie Maras
University of Bath


Collection date(s):

From 2018 to 2019

Temporal coverage:

From 2008 to 2018

Geographical coverage:

Western Europe


Data collection method:

There were three qualifying criteria for inclusion of a national autism policy in the sample. I defined national policy as a policy emanating from a Parliament or Assembly with devolved powers over education, health and social care. Firstly, the Parliament or Assembly had to be in a country classified as Western European, defined as included in the United Nations Western European and Others Group (WEOG) dataset. Secondly, it had to have a current, autism-specific policy (a policy dealing exclusively with autism). This was to isolate autism policy from disability policy and ensure reliability. Thirdly, there had to be sufficient detail in the policy to enable the instrument types and other details to be coded. Twelve policies met these criteria. The dataset also identifies those policies which were excluded, and the reasons why.

Technical details and requirements:

Files were prepared in Microsoft Excel and NVivo.

Documentation Files

Policy Mapping … Locations.xlsx
application/vnd.openxmlformats-officedocument.spreadsheetml.sheet (14kB)
Creative Commons: Attribution 4.0


Economic and Social Research Council (ESRC)

PhD Studentship – A seat at the table: the causes, process and effect of the integration of the autistic community into policy in England and Denmark

Publication details

Publication date: 20 September 2020
by: University of Bath

Version: 1


URL for this record:

Related papers and books

Precious, K., 2020. Informed, involved, or empowered? Three ideal types of autism policy design in Western Europe. European Policy Analysis, 7(1), 185-206. Available from:

Contact information

Please contact the Research Data Service in the first instance for all matters concerning this item.

Contact person: Katharine Precious


Faculty of Humanities & Social Sciences
Politics, Languages and International Studies