Dataset for "A patient-industry complex? Investigating the financial dependency of UK patient organisations on drug company funding"

This digital dataset includes Appendices accompanying the paper entitled ‘A “patient-industry complex”? Investigating the financial dependency of UK patient organisations on drug company funding (2012-2016)’.

The Appendices provide (1) raw data analysed in the paper; (2) background details of data collection and analysis; (3) additional research findings and commentary.

The Appendices draw on data extracted from two sources:

A. Yearly disclosure reports published by 62 UK-based drug companies, on their respective websites, including payments made to patient organisations registered as charities in the UK;
B. Yearly financial accounts produced by 399 UK-based patient organisations and published on charity regulator websites.

The data is divided into Appendices which are signposted throughout the Methods and Findings sections of the above-mentioned article.

Keywords:
pharmaceutical industry, patient organisations, payments, transparency, conflicts of interest, funding, financial dependency
Subjects:

Cite this dataset as:
Ozieranski, P., Pitter, J., Rickard, E., Mulinari, S., Csanadi, M., 2021. Dataset for "A patient-industry complex? Investigating the financial dependency of UK patient organisations on drug company funding". Bath: University of Bath Research Data Archive. Available from: https://doi.org/10.15125/BATH-00904.

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Data

Online_Appendix_1_v1.1.docx
application/vnd.openxmlformats-officedocument.wordprocessingml.document (51kB)
Creative Commons: Attribution 4.0

Details of data collection - drug company disclosure reports

Online_Appendix_2_v1.2docx.docx
application/vnd.openxmlformats-officedocument.wordprocessingml.document (37kB)
Creative Commons: Attribution 4.0

Details of data collection - patient organisation annual accounts

Online_appendices … v1.2.6.xlsx
application/vnd.openxmlformats-officedocument.spreadsheetml.sheet (139MB)
Creative Commons: Attribution 4.0

Details of data organisation and preparation for analysis; data underpinning the analysis presented in the paper; additional background calculations

Creators

Janos Pitter
Syreon Research Institute

Emily Rickard
University of Bath

Marcell Csanadi
Syreon Research Institute

Contributors

University of Bath
Rights Holder

Coverage

Collection date(s):

From 1 June 2017 to 31 July 2018

Temporal coverage:

From 2012 to 31 December 2016

Geographical coverage:

The UK

Documentation

Data collection method:

The methodology used to create this dataset is described comprehensively in the Methods section of the paper entitled "A “patient-industry complex”? Investigating the financial dependency of UK patient organisations on drug company funding (2012-2016)". In short, the data collection process had three stages. First, we downloaded disclosure reports detailing the number and value of payments to patient organisations made by a sample of 108 companies participating in the Disclosure UK initiative in 2015 (https://www.abpi.org.uk/our-ethics/disclosure-uk/). The reports covered the 2012-2016 calendar years. Second, we searched for the annual accounts of patient organisations identified in the drug company payment disclosure reports on the websites of the three UK charity regulators, that is the Charity Commission for England and Wales (https://www.gov.uk/government/organisations/charity-commission), the Scottish Charity Regulator (https://www.oscr.org.uk/) and the Charity Commission for Northern Ireland (https://www.charitycommissionni.org.uk/). The reports covered the 2012/3-2016/17 financial years. For patient organisations identified with reports identified on the charity regulator websites we extracted the yearly values of income and expenditure. Third, we collected available online information on the following characteristics of patient organisations identified in the drug company payment disclosure reports: organisational goal; presence of members or volunteers; geographical scope of activity headquarter location within the UK; represented disease area. The data from was initially extracted into separate Excel spreadsheets and subsequently combined for the purposes of analysis. In total, this online dataset comprises 37 Appendices, providing background details on the data collection, aggregation and analysis as well as additional research results and related commentary.

Technical details and requirements:

The data was created and prepared for analysis using Excel (primarily "countifs", "sumifs", and "V-lookup" functions).

Additional information:

The data is organised into appendices which correspond with specific parts of the Methods and Results section of the paper entitled "A “patient-industry complex”? Investigating the financial dependency of UK patient organisations on drug company funding (2012-2016)".

Funders

Forskningsrådet om Hälsa, Arbetsliv och Välfärd (FORTE)
https://doi.org/10.13039/501100006636

What can be learnt from the new pharmaceutical industry payment disclosures?
2016-00875

Vetenskapsrådet (Swedish Research Council)
https://doi.org/10.13039/501100004359

Following the money: cross-national study of pharmaceutical industry payments to medical associations and patient organisations
2020-01822

Publication details

Publication date: 7 December 2021
by: University of Bath

Version: 1

DOI: https://doi.org/10.15125/BATH-00904

URL for this record: https://researchdata.bath.ac.uk/id/eprint/904

Related papers and books

Ozieranski, P., Pitter, J. G., Rickard, E., Mulinari, S. and Csanadi, M., 2021. A ‘patient–industry complex’? Investigating the financial dependency of UK patient organisations on drug company funding. Sociology of Health & Illness. Available from: https://doi.org/10.1111/1467-9566.13409.

Contact information

Please contact the Research Data Service in the first instance for all matters concerning this item.

Contact person: Piotr Ozieranski

Departments:

Faculty of Humanities & Social Sciences
Social & Policy Sciences

Research Centres & Institutes
Centre for Analysis of Social Policy (CASP)